Revolutionise your endometriosis research by standardising data and biospecimen collection

The innovators of EPHect provide an overview and status quo of the Endometriosis Phenome and Biobanking Harmonisation Project (EPHect), addressing:

• why is streamlined data collection so important
• how do we effectively implement the EPHect tools
• how does working together accelerate progress in endometriosis innovation
• what we have achieved together

In the video (WESinar) below you’ll meet joint EPHect principal investigators, professors Stacey Missmer and Krina Zondervan. They are joined by professor Christian Becker, who developed the EPHect surgical form (SSF), and doctor Mette Elkjær Madsen, who successfully implemented the EPHect endometriosis patient questionnaire not only in another language, but also in another setting.  EPHect programme manager, Lone Hummelshoj, facilitates their discussion and fields questions from the audience.

Key messages

• Don’t re-invent the wheel in endometriosis research: tools are ready, in 19 languages, for you to freely utilise in your investigations
   
• Using the same tools when we capture data enables international collaboration, comparison, and validation of data collected
   
• The tools are available in REDCap – and it may seem that there are many elements of these, but they are easier to use than you may first believe
   
• There are supported procedures in place to translate, validate, and implement the EPHect tools locally
   
• More than US$35 million in endometriosis research funding have been raised among the centres using the tools, because funders appreciate that
  • working to the same standards yield more robust results
  • research aims are time and cost efficient when data and samples exist already in harmony
  • defining, not ignoring, patient diversity is essential for precision and personalised medicine advancement
     
• New EPHect tools are in development:
  • experimental models
  • diagnositic imaging in endometriosis
     
• Next EPHect focus includes network and community building to further enhance collaborations