In this section we list research results and publications, which have used the EPHect tools in their studies, along with the publications of the tools.
— Research results
— EPHect EPQ translations
— EPHect publications
Bethan Swift, Bahar Taneri, Christian M Becker, Hasan Basarir, Huseyin Naci, Stacey A Missmer, Krina T Zondervan, Nilufer Rahmioglu. Prevalence, diagnostic delay and economic burden of endometriosis and its impact on quality of life: results from an Eastern Mediterranean population. Eur J Public Health 2024;34(2):244-252.
Bethan Swift, Bahar Taneri, Ilgin Cagnan, Christian M Becker, Krina T Zondervan, Maria A Quigley, Nilufer Rahmioglu. Predictors and trends of Caesarean section and breastfeeding in the Eastern Mediterranean region: data from the cross-sectional Cyprus Women’s Health Research (COHERE) Initiative. PlosOne 2023;18(7):e0287469.
Aishwarya V Bhurke, Pramathes DasMahapatra, Sheila Balakrishnan, Shagufta A Khan, Sally Mortlock, Vinita Das, Nirmala Chellamma, Sowmini Cheruvara Vadakkathil, Aarti Srivastava, Amiya Majumdar, Achhelal Pasi, Geetanjali Sachdeva, Grant W Montgomery, Rahul K Gajbhiye. Clinical characteristics and surgical management of endometriosis-associated infertility: A multicenter prospective cohort study. Int J Gynaecol Obstet 2022;159(1):86–96.
Bethan Swift, Huseyin Naci, Bahar Taneri, Christian M Becker, Krina T Zondervan, Nilufer Rahmioglu. The Cyprus Women’s Health Research (COHERE) Initiative: normative data from the SF-36v2 questionnaire for reproductive aged women from the Eastern Mediterranean. Qual Life Res 2022;31(7):2011-2022.
Idhaliz Flores-Caldera, Paola M Ramos-Echevarría, José A Oliveras-Torres, Natasha Santos-Piñero, Estefanía D Rivera-Mudafort, Denisse M Soto-Soto, Brian Hernández-Colón, Luis E Rivera-Hiraldo, Loraine Mas, Mary Rodríguez-Rabassa, Nabal J Bracero, Edgardo Rolla; Ibero-American Endometriosis Association. Ibero-American Endometriosis Patient Phenome: Demographics, Obstetric-Gynecologic Traits, and Symptomatology. Front Reprod Health 2021;3:667345.
Mira Mousa, Moamar Al-Jefout, Habiba Alsafar, Christian M Becker, Krina T Zondervan, Nilufer Rahmioglu. Impact of endometriosis in women of Arab ancestry on: health-related quality of life, work productivity, and diagnostic delay. Front Glob Womens Health 2021;2:708410.
Inigu Urteaga, Mollie McKillop, Noémie Elhadad. Learning endometriosis phenotypes from patient-generated data. NPJ Digit Med 2020;3:88.
Amy D DiVasta, Allison F Vitonis, Marc R Laufer, Stacey A Missmer. Spectrum of symptoms in women diagnosed with endometriosis during adolescence vs adulthood. Am J Obstet Gynecol 2018;218(3):324.e1-324.e11
Jerri A Miller, Stacey A Missmer, Allison F Vitonis, Vishnudas Sarda, Marc R Laufer, Amy D DiVasta. Prevalence of migraines in adolescents with endometriosis. Fertil Steril 2018;109(4):685-690.
Arezoo Arabipoor, Kiandokht Kiani, Abbas Ebadi, Ashraf Moini, Zahra Zolfaghari, Mohadeseh Goudarzi. The Translation and Cross-Cultural Adaptation of The Persian Version of The WERF EPHect Endometriosis Patient Questionnaire: A Cross-Sectional Study. Int J Fertil Steril 2025;19(4):394-401.
Gabriele Barbosa Anelli, Rafael Zucco de Oliveira, Juliana Meola, Daniela Michelazzo, Ricardo Perussi-e-Silva, Julio Cesar Rosa-e-Silva, Christian Becker, Nilufer Rahmioglu, Lone Hummelshoj, Stacey Missmer, Krina Zondervan, Omero Benedicto Poli-Neto. Translation, cross-cultural adaptation into Brazilian Portuguese and electronic migration of the WERF EPHect endometriosis patient questionnaire. Revista Brasileira de Ginecologia e Obstetrícia 2025;47:e-rbgo40.
Line Holdgaard Thomsen, Laura Emilie Vexø, Tine Henrichsen Schnack, Karina Ejgaard Hansen, Axel Forman, Dorthe Hartwell, Henriette Svarre Nielsen, Lone Hummelshoj, Mette Nyegaard, Mette Elkjær Madsen. Danish translation, cross-cultural adaptation, and electronic migration of the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project Endometriosis Patient Questionnaire. Front Glob Womens Health 2023;4:1102006.
Idhaliz Flores-Caldera, Paola M Ramos-Echevarría, José A Oliveras-Torres, Natasha Santos-Piñero, Estefanía D Rivera-Mudafort, Denisse M Soto-Soto, Brian Hernández-Colón, Luis E Rivera-Hiraldo, Loraine Mas, Mary Rodríguez-Rabassa, Nabal J Bracero, Edgardo Rolla; Ibero-American Endometriosis Association. Ibero-American Endometriosis Patient Phenome: Demographics, Obstetric-Gynecologic Traits, and Symptomatology. Front Reprod Health 2021:3:667345.
Cise Mis, Gokcen Kofali, Bethan Swift, Pinar Yalcin Bahat, Gamze Senocak, Bahar Taneri, Lone Hummelshoj, Stacey A Missmer, Christian M Becker, Krina T Zondervan, Bahar Yuksel Ozgor, Engin Oral, Umit Inceboz, Mevhibe B Hocaoglu, Nilufer Rahmioglu. Protocol for the Cultural Translation and Adaptation of the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project Endometriosis Participant Questionnaire (EPHect). Front Glob Womens Health 2021;2:644609.
Evan Dimentberg, Claire Cardaillac, Evelyn Richard, Anne-Sophie Plante, Sarah Maheux-Lacroix. Translation and Cultural Validation of the WERF EPHect Endometriosis Patient Questionnaire into Canadian French. J Obstet Gynaecol Can 2021;43(7):817-821.
Lone Hummelshoj, Daniëlle Peterse, Kaylon L Bruner-Tran, Stacey A Missmer, Erin Greaves. Enhancing collaboration in endometriosis research through the initiative of the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project (EPHect). Mol Hum Reprod 2025;31(3):Epub.
Katherine A Burns, Daniëlle Peterse, Caroline B Appleyard, Ronald Chandler, Sun-Wei Guo, Amelia Pearson, Eleonora Persoons, Michael S Anglesio, Michael S Rogers, Kathy L Sharpe-Timms, Joris Vriens, Stacey L McAllister, Kelsi N Dodds, Fiona L Cousins, Lone Hummelshoj, Stacey A Missmer, Kaylon L Bruner-Tran, Erin Greaves, for the EPHect Experimental Models Working Group. WERF Endometriosis Phenome and Biobanking Harmonisation Project for Experimental Models in Endometriosis Research (EPHect-EM-Homologous): homologous rodent models. Mol Hum Reprod 2025;31(3):Epub.
M Louise Hull, Raul Gomez, Warren B Nothnick, Ruth Gruemmer, Katherine A Burns, Mohammed Zahied Johan, Isabella R Land, Stacey A Missmer, Lone Hummelshoj, Erin Greaves, Kaylon L Bruner-Tran, for the EPHect Experimental Models Working Group. WERF Endometriosis Phenome and Biobanking Harmonisation Project for Experimental Models in Endometriosis Research (EPHect-EM-Heterologous): heterologous rodent models. Mol Hum Reprod 2025;31(3):Epub.
Kelsi N Dodds, Victor Fattori, Nick A Andrews, Caroline B Appleyard, Julie A Christianson, Raul Gomez, Stacy L McAllister, Stacey A Missmer, Jens Nagel, Paulina Nunez-Badinez, Michael S. Rogers, Philippa TK Saunders, Miguel A Tejada, Katy Vincent, Lone Hummelshoj, Kaylon L Bruner-Tran, Erin Greaves, for the EPHect Experimental Models Working Group. WERF Endometriosis Phenome and Biobanking Harmonisation Project for Experimental Models in Endometriosis Research (EPHect-EM-Pain): methods to assess pain behaviour in rodent models of endometriosis. Mol Hum Reprod 2025;31(3):Epub.
Elizabeth E Marr, Juan S Gnecco, Stacey A Missmer, Shannon M Hawkins, Kevin G Osteen, Lone Hummelshoj, Erin Greaves, and Kaylon L Bruner-Tran, for the EPHect-Experimental Models Working Group. WERF Endometriosis Phenome and Biobanking Harmonisation Project for Experimental Models in Endometriosis Research (EPHect-EM-Organoids): endometrial organoids as an emerging technology for endometriosis research. Mol Hum Reprod 2025;31(3):Epub.
Tinya Lin, Catherine Allaire, Sawsan As-Sanie, Pamela Stratton, Katy Vincent, G David Adamson, Lars Arendt-Nielsen, Deborah Bush, Femke Jansen, Jennifer Longpre, Luk Rombauts, Jay Shah, Abeesha Toussaint, Lone Hummelshoj, Stacey A Missmer, Paul J Yong; WERF EPHect Physical Examination Working Group. World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project: V. Physical examination standards in endometriosis research. Fertil Steril 2024;122(2):304-15.
Christian M Becker, Marc R Laufer, Pamela Stratton, Lone Hummelshoj, Stacey A Missmer, Krina T Zondervan, G David Adamson; WERF EPHect Working Group. World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project: I. Surgical phenotype data collection in endometriosis research. Fertil Steril 2014;102(5):1213-1222.
Allison F Vitonis, Katy Vincent, Nilufer Rahmioglu, Amelie Fassbender, Germaine M Buck Louis, Lone Hummelshoj, Linda C Giudice, Pamela Stratton, G David Adamson, Christian M Becker, Krina T Zondervan, Stacey A Missmer; WERF EPHect Working Group. World Endometriosis Research Foundation (WERF) Endometriosis Phenome and biobanking harmonization project (EPHect): II. Clinical and covariate phenotype data collection in endometriosis research. Fertil Steril 2014;102(5):1223-32.
Nilufer Rahmioglu, Amelie Fassbender, Allison F Vitonis, Shelley S Tworoger, Lone Hummelshoj, Thomas M D'Hooghe, G David Adamson, Linda C Giudice, Christian M Becker, Krina T Zondervan, Stacey A Missmer; WERF EPHect Working Group. WERF Endometriosis Phenome and Biobanking Harmonization Project (EPHect): III. Fluid biospecimen collection, processing, and storage in endometriosis research. Fertil Steril 2014;102(5):1233-43.
Amelie Fassbender, Nilufer Rahmioglu, Allison F Vitonis, Paola Viganò, Linda C Giudice, Thomas M D'Hooghe, Lone Hummelshoj, G David Adamson, Christian M Becker, Stacey A Missmer, Krina T Zondervan; WERF EPHect Working Group. World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project (EPHect): IV. Tissue collection, processing, and storage in endometriosis research. Fertil Steril 2014;102(5):1244-53
Casper RF. New tools for enhancing collaborative endometriosis research. Fertil Steril 2014;102(5):1211-12
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